#factorvleiden

13 years and still rocking the bling goggles! . If you are a teacher following me, what do you teach and how many years? . If you aren’t a teacher and following me, what was your fave subject in high school?


7💬Normal

La vida no es una carrera....es una aventura ! Disfruta el momento 🚲 #cyclist #cycling #cyclistqueen #factorvleiden #plussizeblog


0💬Normal

Today marks a year from when my real troubles begun. It's been a journey! Hospital stays, intensive care, clots, hernia, abcess, infections, femoral central lines (They are the worst) stomach patches, PE, DKA, Zimmer frames, physio, diagnosed with type 1 diabetes and Factor V Leiden and starting and changing new meds but I've survived 💪🏼 Missing my 30th party and holiday stung and it still hurts to eat and drink at times, my blood still isn't right, ketones are the devil, chest and leg pain suck and I get frustrated I have to go to the hospital at least every 3 days but I'm further on than I was! This is really a massive appreciation post to my friends, family and colleagues who have sat by my hospital bed, heard me vent, hugged me when I've cried and supported me. It's not always easy for me but I'm eternally grateful to my special ones and I wouldn't have coped this year without you xx #Grateful #Lucky #Loved #MyFaves #Diabetes #TypeOne #Staypositive #Clots #Thrombosis #FactorVLeiden #IveGotThis #OneYearOn


33💬Normal

They’re making their list for Santa and they have pretty much circled everything in the toy catalog 😬🤦‍♀️ . This time of year used to be extremely stressful financially. . But once I started my wellness coaching business and receiving a second stream of income, now I can enjoy the holiday season stress free. . The best part.... . I get to work my business on my own schedule- anywhere from my phone.... . And I get to work it with my besties while working on my health and fitness. . It is so beyond worth it! 🙌🙌 . What could a second stream of income do for you? Your family? . Would you use it for Christmas goodies, bills or other extras? . Comment below and let me know! 👇👇


2💬Normal

“When you give yourself, you receive more than you give” #happy #cyclist #plussizemodels #factorvleiden


2💬Normal

Yay for Saturday! It's a beautiful day here in the Midwest, and I'm having flashbacks to Vienna at daybreak. This is the breathtaking Stephansdom, or Cathedral of St. Stephen. Over the centuries, it's been through a lot, even surviving damage sustained during World War II. Have you had the chance to visit it? 🇦🇹⛪ . . . . . . . #stephansdom #vienna #wien #catholicchurch #catholic #cathedral #sacredarchitecture #streetphotography #travelersofig #wanderlust #passportready #austriatravel #flyventurelive #factorvleiden #invisibleillness #throughmylens #thehappynow #momentsintime #photooftheday #instagood #travelgram #exploremore


14💬Normal

Of the last 29 months I've spent 20 of them doing daily clexane injections. It's given me two healthy babies although I'm totally ready to have a tummy free of pin pricks. The final day has arrived- last syringe! #factorvleiden


2💬Normal

Instead of focusing on the girl who fell short, honor the girl who showed up gutsy to try. . Today and everyday, that’s what counts.


2💬Normal

✨ “Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict.”✨ #zebra #eds #ehlersdanlossyndrome #factorvleiden #bloodthinners #potssyndrome #gastroparesis #dvt #spoonie #chronicillness


0💬Normal

Love this!! #Repost @coloradobehrs • • • • • • Carpenter Peak Don't just tell your kids to be active and get outside and play. Lead by example. Thankful to be able to do this again after working hard to heal myself this past year with support from my family, doctors, trainers, MPC fam, PT/Coach @tdmcgurl_pt and friends around the world. I'm experiencing more progress in my healing process which is exciting! And check out that cutie of ours peeking from behind my shoulder. Both her and her brother climbed #CarpenterPeak like champs. 🏞🧗‍♀️👨‍👩‍👧‍👦 👍❤ @alexnorouzi @valbo00 @rockymtnpeakers @samheughan @jordanalbrown @mpcfitlanders #peaker #traumaticbraininjury #factorvleiden #outdoorfamily #coloradobehrs


0💬Normal

When I was young I used to dream of being skinny. I thought that all these other girls at school were so thin and that in order to be considered pretty or popular I would have to be thin. Meanwhile I was a teen struggling with PCOS (and didn’t know it) so naturally it was harder to lose weight. Especially my household was a Processed food + CARB heavy. So in my early 20’s I was trying everything under the sun. I went to the gym for 1-2 hrs a day with no clue what I was doing. I tried weight loss pills. I paid a ton for a personal trainer. I tried counting calories or starving myself, basically all the things that just didn’t work. I had such a bad relationship with food and self body image. So when I found my home workouts I thought well “here’s to hoping”. I didn’t really think it was going to change my life. I never thought I could get in shape and especially from home. I have now learned how to fuel myself with proper nutrients and not in a micro managing kind of way. I now have been introduced into the wonderful world of personal development and healing my mindset. I am now excited to push my physical limits and really appreciate the human body. So when I happened to catch a glimpse of my reflection the other day I couldn’t help but think “WHO TF IS THAT?!”. I have completely done a 180! It’s never a right time to get started on your health journey. Truth is things are always going to be stopping you, but it’s up to you to decide to take control of your life. Let me help you make that change. I believe in you. Like for real. 💕


4💬Normal

Don't just tell your kids to be active and get outside and play. Lead by example. Thankful to be able to do this again after working hard to heal myself this past year with support from my family, doctors, trainers, MPC fam, PT/Coach @tdmcgurl_pt and friends around the world. I'm experiencing more progress in my healing process which is exciting! And check out that cutie of ours peeking from behind my shoulder. Both her and her brother climbed #CarpenterPeak like champs. 🏞🧗‍♀️👨‍👩‍👧‍👦 👍❤ @alexnorouzi @valbo00 @rockymtnpeakers @samheughan @jordanalbrown @mpcfitlanders #peaker #traumaticbraininjury #factorvleiden #outdoorfamily #coloradobehrs


3💬Normal

Brunch. 🥚🍤 I'm still here. Generally doing well and feeling energetic and happy. Leg wounds are closed up, which is fantastic. I had a patch of being able to wear normal shoes! 🎉🎉👢👠 But, possibly due to eating some carbs again, my legs have puffed up like pufferfish. 😣🙈😅 I'm not sure of cause, though. I suspect gluten more than sugar, actually. Autoimmune response. Anyway, keto and carnivore suits me. . . . #lowcarb #healthyfood #healthylifestyle #eatyourselfhealthy #medicinefood #nomedication #healthyself #hypothyroidism #factorvleiden #weightloss #healthyeating #eatclean #realfood #grainfree #sugarfree #intermittentfasting #fasting #keto #ketogenic #lchf #autoimmunedisease #autoimmunehealing #insufficientveins #orthomoleculartreatment #megavitamindoses #vitamintreatment #carnivore


0💬Normal

Through my journey, the same message has been repeated to me over and over- not one person will EVER have power over my heart, over who I am and what I am capable of. . That is an inside job. . That is on me. . Me. . Everyone has a starting point. . Everyone has a day 1. . When is yours??? Because I have a tribe of women to support you and keep you accountable when you lean in!


1💬Normal

Simple meals are a staple in my jam packed schedule.⁣ ⁣ Why?⁣ ⁣ Because I REFUSE to be the fast food queen 👑 ⁣ ⁣ Been there,⁣ Done that,⁣ Found out it was a BS excuse⁣ ⁣ Yes, I have to lug a lunch bag around but the amount of $$ it saves me far outweighs the inconvenience. Wanna know the recipe for this one?⁣ ⁣ 3/4 C. Shredded Chicken Breast (I made an amazing ranch shredded chicken in the crock pot)⁣ 1/2 C. Cooked Sweet Potato⁣ 1 C. Frozen Riced Broccoli⁣ 1 tsp. EVOO⁣ Everything But the Bagel Seasoning (Optional) ⁣ ☝🏼☝🏼 That’s freaking it girlfriend, super simple and I threw it together with what I had pre-prepped individually.


1💬Normal

Mientras perseveramos y resistimos podemos conseguir todo lo que queremos ! #factorvleiden #cycling #cyclist #cyclinggirl #cyclingqueens #plussizemodels


0💬Normal

I saw this this morning and it really resonated with me. Yesterday I had to have my gallbladder taken out, last year I had the hysterectomy and double mastectomy. Too much I thought, when will all of this be over. Truly what I haven’t wanted all along is to get back to me, the healthy me. Yea I do have a life long condition now Factor Five Leiden which I’ll be on blood thinners the rest of my life for. And yes I am BRCA1 positive for which I’ve done everything I can to prevent cancer and will continue to be observant and proactive about this the rest of my life as well. But when it comes down to it I just want to find me again without all of these surgeries and conditions and reading this, I thought this is right, all that I have done so far and continue to do is going to get me to the healthier version of me I can be now, and though it may be a rough ride I know deep down I can do it. For anyone else out there struggling weather it be physical health, mental health, financially or anything else, take a close look and see if what you are going through really could be preparing you in the long run for what you really want. @brcastrong @tracytheprevivor @arohrer427 @chancieraefit #positivevibes #positivity #selfcare #strongmom #strongmindset #innerstrength #innerthoughts #healing #postmastectomy #posthysterectomy #postcholecystectomy #factorvleiden


8💬Normal

Now I can kiss you all the time 😘❤️🥰


2💬Normal

You really can't visit southern Iceland without stopping at Diamond Beach. Pieces of iceberg literally wash up on the black sand shore, and glitter like jewels. When I went, it was a bitterly cold day laced with icy rain, but the colors -- like the country itself -- were magical. 💎🌊 . . . . . . . #diamondbeach #iceland #icelandtravel #wanderlust #wanderlustwednesday #flyventurelive #outdoorphotography #naturephotography #marvelsofnature #majestic #landscape #europetravel #travelersofig #womenwhotravel #womenwhoexplore #exploremore #wheretonext #passportready #flyventurelive #factorvleiden #invisibleillness #livethelittlethings #thehappynow #vacation #mood #photooftheday #iceberg #rainyday #blacksand #beach


8💬Normal

Yeah.. Thats me.. The hard ass motherfucker thats skinny and carries a French Bulldog in a bag. Step to me.. I'll crush your throat with my cane and let my pup chew on your ears.. 😂 #CHOPPERRICH #FACTORVLEIDEN #PULMONARYHYPERTENSION #DEATHPROOF #FRENCHBULLDOG


10💬Normal

There may be snow ❄️ on the ground but this is one cold drink your girl won’t be giving up. ⁣ ⁣ Even on the days that have me running 🏃‍♀️ across campus 5 times and I’m freezing my tail off. ⁣ ⁣ Having the equivalent of 7 trips to the salad bar in one delicious smoothie is my kind of nutritious punch.⁣ ⁣ Plus, it means guilt free iced pumpkin 🎃 spice lattes. 💁🏼‍♀️


1💬Normal

Yes my business has given my family and I a second stream of income to pay off debt and to pay for the extras in life, BUT you see that smile, that feeling of belief in oneself, that confidence- that is PRICELESS. . The adventure is just starting and you’re welcome to join!


2💬Normal

🥰 I’ve always enjoyed my time with my nieces and nephews, but this weekend hit different. . This year I found out I have a couple of conditions that may limit my options for motherhood, one is called Factor V Leiden and the other is called Ehlers-Danlos syndrome. The first is a blood clotting disorder and the other is a connective tissue disorder. Carriers of FVL face an increased risk of stillbirth up to 3-5 times higher than non carriers, and EDS is associated with miscarriage (among other serious complications with both). . Growing up I never really wanted children, and recently I’ve only just started coming around to the idea of maybe one day considering them, but finding out it may be difficult or even impossible (depending on the type of EDS) to carry a child has definitely sent me soul-searching. I think that may be part of why I’ve been dragging my feet on my genetic testing, I’m still enjoying daydreaming and not quite ready to hear if some of life’s pathways may not be open to me. (See: HIMYM Symphony of Illumination where Robin can never become a “pole vaulter”). . Anyway, this is the first time I’ve had all FIVE of my nieces and nephews together and honestly it was the best weekend of my life. I can never get enough of these days! ❤️❤️❤️❤️❤️


3💬Normal

July 22nd, 2018: The happiest day of my life! Rob proposed and we get to grow old together. July 26th, 2018: This is a photo of me, I’m at the hospital (reading a bridal magazine). I had been vomiting on and off for months and had classic gall bladder symptoms. I finally listened to my body and scheduled an ultrasound appointment to confirm gall bladder surgery. Sure enough, it was my gall bladder. The doctors took me back for one more test, since my gall bladder was so swollen. A flood of doctors rushed into the room to look at the screen. The test found a Portal Vein Thrombosis (#PVT). I had full blockage in my portal vein. This major vein allows blood to flow into the lower organs. Without this blood flow, my gall bladder became diseased. After going to a hematologist, I also found out that I have two blood disorders. I have Factor V Leiden (#FVL) and Methylenetetrahydrofolate Reductase (#MTHFR). Ladies, PLEASE research your birth control and dig into your family history. It could save your life!


2💬Normal

Snow isn't typically on the ground for Veterans' Day here, but it does add a nice touch. Thank you and much love to all who have served. 🙇‍♀️🇺🇲 . . . . . . . . . #veteransday #snowfall #snow #snowshot #outdoorphotography #outdoors #vsco #naturephotography #throughmylens #whatisee #photooftheday #instagood #mood #livethelittlethings #thehappynow #catholic #flyventurelive #travelmore #exploremore #factorvleiden #invisibleillness #carpediem #ponder #inspiration #midwest #fall #winter #wintersicoming #pattern


7💬Normal

One year ago I held you for the last time. I rocked you, I sang to you, you were baptized even though I knew you were already in heaven. Then I did the hardest thing I’ve ever been asked to do. I left the hospital without the baby I came with. I remember thinking there is nothing I will do in this life that will be harder than this. It was a beautiful sunny day and it made me sad that the world could look so pretty without you in it. I put my hand out the window on the way home hoping the cool breeze would make me feel alive. Being your mom, Avery, has filled my heart with more love than I thought possible. Saying goodbye to you broke it open in ways more painful than I could imagine but it allowed even more love & light in. In the coming weeks I’ll be looking at your sister with the same pride and admiration I did with you last year. I can only pray she’s crying and looking back at me when I do. . 💙💗👼🏽🌈 #acornerforavery


36💬Normal

EEEEEEEEEEK!!! ⁣ ⁣ This moment has me feeling like I’m sliding into home just under the glove 🥎⁣ ⁣ One of my goals this year was to qualify for and earn the annual #goalgetters trip that happens in March. ⁣ ⁣ This years trip is in Punta Cana, Mexico and while I won’t actually be going because it’s the week AFTER spring break and #priorities 🙄 but I’m so stinking proud of myself for hitting that goal. ⁣ ⁣ Girlfriend, this is your friendly Sunday reminder that dreams don’t work unless you do.


1💬Normal

Keep trying new things and stepping out of your comfort zone.... with your friends, with your person, with your family, or by yourself. . The fun really starts when you’re living outside your comfort zone. . I can now check off pole dancing class off my vision board!


1💬Normal

Link to full video in bio. Switching to heparin injections for the last few weeks of pregnancy. We are almost done! Thank you @captainsparkie for doing these for me 👀. #factorvleiden #factor5leiden #mthfr #mthfrgenemutation #mthfrawareness #mthfrpregnancy #factorvleidenpregnancy #factorvleidenawareness #thycasurvivor #thyroidsurvivor #heparin #bloodthinninginjections #pregnancy #thirdtrimester #momlife


10💬Normal

Self-Care is. not. SELFISH!⁣ ⁣ ☝🏼Girlfriend, read that AGAIN☝🏼⁣ ⁣ Self-care has been a controversial topic for years, but while some people deem self-care to be selfish and pretentious, it is actually a very necessary part of maintaining your mental health.⁣ ⁣ This concept can involve a wide variety of activities, from drinking warm tea with a good book to visiting an amusement park and eating a corndog 🤷🏼‍♀️⁣ ⁣ Self-care is simply taking some time every once in a while to make sure you’re treating yourself right, like taking a break from studying or hanging out with people you care about … making sure that you are taking care of yourself and your well-being.⁣ ⁣ It doesn’t always feel good in the moment. But after the fact, I’m always glad I hit the gym. How did you all take care of yourself on this #SelfCareSaturday?


1💬Normal

We’ve been blessed with such a beautiful day of celebration for our sweet boy’s first year. From the candles being lit in his honor, to the sweets, flowers, and a tranquil beach walk; I couldn’t imagine a better birthday for him, short of him being here to share it with us. Thank you all so much for the love. . 💙💗👼🏽🌈 #acornerforavery


59💬Normal

Happy Saturday, friends! Today's forecast in my corner of the world is sunny and 75 degrees. I'm definitely going to get some outside time today! What weekend plans do you have? . . . . . . . . #fall #autumn #fallfoliage #outdoorphotography #fallscape #midwestliving #midwest #midwestmoment #smc #blueskies #myview #throughmylens #whatisee #viewoftheday #photooftheday #instagood #mood #ponder #catholic #factorvleiden #flyventurelive #invisibleillness #thehappynow #livethelittlethings #collegedays #womeninacademia #explore


7💬Normal

You will always be too much of something for someone: too BIG⁣ too LOUD⁣ too SOFT⁣ too EDGY⁣ too WEIRD⁣ too AMBITIOUS⁣ ⁣ Apologize for mistakes.⁣ Apologize for unintentionally hurting someone - profusely. ⁣ ⁣ But don’t apologize for being who you are.⁣ ⁣ Hey girl, let me tell you, I used to C O N S T A N T L Y apologize for who I was. I’ve always had a big personality. ⁣ ⁣ I’ve always loved to a fault.⁣ I’ve often given people fifth and sixth chances that didn’t even deserve a second because I firmly believe that there is GOOD in everything.⁣ It used to weigh heavy on my heart that I was who I was but somewhere along the lines I learned how to be UNAPOLOGETICALLY me.⁣ ⁣ I no longer worry what others think of me (sorry but I literally don’t have time for it), I work my A$$ off and deserve absolutely everything that has come to me within the past year and I’ve decided that who I am is ENOUGH.⁣ ⁣ And GIRL, let me tell you a little secret.⁣ ⁣ So. Are. YOU!⁣ ⁣ We were never meant to temper ourselves to fit into a mold that society wants. We were designed to be our own individuals, so just take a leap and you’ll fall in love with who you are at your core.⁣ ⁣ Girlfriend, you have to be you so loudly that other people like you can find you. ⁣ ⁣ Jump outta that shell, do things that take you out of your comfort zone and stop apologizing for the perfectly imperfect woman you are.


10💬Normal

Man today has been a fight. I did the Black negative space pour at midnight & while I was trying to cut off the bottom of my cup for an open pour, I cut my hand. I’m on blood thinners y’all, so there was more blood than expected. Thankfully the xacto knife was sharp so it was a very clean cut. So I went to bed. The second painting is OK but I had other colors that got taken over by the blue 🤨 The last one was a pour over. I hated it & scraped it off. It’s a 16X20 so it was a good amount of lost paint, which hurts my soul! LOL! I like it tho, I’m getting a mountain in northern lights vibe. What do you see? So lessons learned: 1. Don’t paint at midnight to avoid painful cuts to palm of hand. 2. Measuring your paint is important unless you have to scrape it. 3. What seems like a cursed canvas can be saved if I slow down & let the paint tell me what to do. So I’m gonna set down my cups & paint & take a rest. My son wants to watch Christmas movies & I think I’m going to indulge him. Since 2017 I have been much more ready for the holidays than before 2017. I’m so excited this year too because the munchkin is walking & kind of talking & so much more aware of what’s going on. Also I’d like to shoutout my good friend Roberta. She sent me floetrol & a box of @decoart paints so I am able to paint. I love you so much lady, even without the paint! #art #dailyart #abstractart #acrylicart #fluidart #opencup #wanderingopencup #acrylicpourart #ametureartist #factorvleiden #cells #lacing #webbing #colors #livecolorfully #allthecolors #livecolorfully #makingamess #watchingpaintdry #messybutfun #whatdoyousee


0💬Normal

During my grad student days in the Sunshine State, my best friend and I took a road trip halfway across the country, ending up in Florida so I could take summer classes...or at least that was the plan. As it turned out, I had a major medical emergency and actually had to complete the course later (and my bff didn't get to spend her vacation quite as planned, either...). But...I did get through it, even if it wasn't how or when I had anticipated. I think it's so important to surround yourself with people who love you and will help you achieve your goals. Without people like that in my life, I couldn't have gotten through all the challenges that I have, and even learned a thing or two in the process. Best wishes and a happy Friday to all of you. 🧡☀️ . . . . . . . #friends #family #bff #florida #floridawelcomecenter #flashbackfriday #oldpictures #gradschool #womeninacademia #womenwhoexplore #travelersofig #wanderlust #roadtrip #thehappynow #livethelittlethings #carpediem #catholic #flyventurelive #factorvleiden #outdoorphotography #invisibleillness #travel #throughmylens #photooftheday #instagood #friyay #mood #dolphin #butyoudontlooksick #stoptheclot


10💬Normal

I used to pay $380 a month for a gym membership and a personal trainer I rarely utilized.⁣ ⁣ Okay, MAYBE once or twice a week I’d roll in, jump on the treadmill and pick up a few weights, but I had NO idea what I was doing outside of those workouts you find on Pinterest. Then, when I was able to schedule in time with the trainer, I wouldn’t see real progress because I didn’t have the necessary consistency or nutrition guidance I needed. ⁣ ⁣ That was it, and $380 a month for a year, is $4,560 😱 … and that’s a REALLY hard pill to swallow when you have NOTHING to show for it.⁣ ⁣ And don’t even get me started on the amount of money I used to spend at Dunkin’ every day, or the drive thru multiple times a week.⁣ ⁣ Right now, for #noexcusenovember, enrollment for my bootcamp is an ADDITIONAL $20 off making it the cheapest it’ll ever be. $140 for a YEAR of over 50 programs that you can do in your living room or at the gym…⁣ ⁣ -for nutrition guides and meal plans⁣ -a month of superfood shakes (with the option to keep them long term)⁣ -access to my private Fit Squad⁣ -daily check ins to keep you on track⁣ -one on one coaching to help you to your goals.⁣ ⁣ Yes, there’s a lot of things you could spend $140 on.⁣ ⁣ But if I knew that $140 would put me where I am today, I would never have hesitated. ⁣ ⁣ I would NEVER have made the excuses.⁣ ⁣ I would have started sooner and paid six times that knowing what I know now.⁣ ⁣ So, girlfriend, if you’ve been waiting for a sign, THIS IS IT!⁣ ⁣ Let’s do the damn thing, and knock a serious dent into your New Years Resolutions.


9💬Normal

I cried today. Do you want to know the last time I cried during my workout? It was on Day 1. I cant even begin to think of how to describe how I’m feeling. I am 100 days sober. I’ve done almost all of my workouts in the morning and I wasn’t a morning person. I have more energy than I ever did before. I feel empowered because I did not break my promise to myself. Also to be honest this is my first program I’ve EVER finished. Yes you heard that right. I have always trailed off at the end of each one but this time I made a promise to COMMIT. So many things have happened in the last 100 days. Time is going to pass anyway so why not change your life. My next wave starts Nov 11. You in?


20💬Normal

Feeling sentimental. But sharing for those who need this. I have forgotten by now exactly how many injections I had to give myself in order to have my second and third baby. Its a vague memory to me all the hours of modified and actual bedrest I endured during my 6 pregnancies spanning almost 10 years (3 of which never made it and had a total of 4 angels) how even though I wasnt afraid, there were times my life was in danger. There were tears, there was depression, there was anxiety, a lot of hospital stays, life saving surgeries (one was an emergancy csection) and a team of several doctors who without them neither my children nor I would be alive. I am thankful that I was guided to the right doctors and proper care and that my three babes are now healthy and strong. Noctis my youngest is going to turn 2 in a few months and without those doctors we would have lost him. We lost his twin, and he lived, only to have a near miss again later and then struggle with mspi and failure to thrive. After all this I am finally taking control of my health and doing better with self care, getting my education, and I continue to fight for them medically and educationally in any way I can. I know right now they are far too young to understand how much I love them and what I do is all for them, but one day I hope they grow up and know that no matter what, I love them and I would fight the devil himself for them (I would also win because lets be honest when I make up my mind to do something I go hard). #infertilitysucks #mspi #mthfrgenemutation #factorvleiden #injections #baby #highriskpregnancy #pcos #pcosweightloss #pcosinfertility #pregnancylossawareness #ectopicpregnancysurvivor #momofthree #fighter #theboywholived #keto #ketoweightloss #lovenoxpregnancy


2💬Normal

9 years ago today I was diagnosed initially with right lower lobe pneumonia & then the ER realized I had a PE. I’m now a lifer on blood thinners & have been diagnosed with Factor V Leiden. #factorvleiden #pulmonaryembolismsurvivor


0💬Normal

What a difference 4.5 months makes. I am down 28lbs and numerous inches. I can see it the most in my face. Before I started ketones, I was pretty down on myself thinking I would never be able to get back in shape. Due to having a total hysterectomy because of my BRCA1 mutation, I went immediately into menapause, ( alot sooner then nature would have intended) which caused me to gain weight. Nothing I was doing was helping and believe me I tried everything I could that wouldn't affect my clotting disorder. Being on blood thinners for life I have to already be careful with what I eat. So as I gained weight I also became more fatigued and down on myself. Enter @chancieraefit and ketones. I watched her story for a little while before deciding to give them a try. Within a week I was feeling more energy and to my surprise I lost 4lbs by the end of first week. Now 4.5 months later Ive lost enough weight to see it myself in pictures from before. I generally feel alot better overall, energy and focus, and am learning to love myself again. It's always hard to take the first step,but that's all it takes one first step after another. Right now is the best time to take that step and try ketones. Go to link in bio or www.Harmony43.challenge.com and take the 10 day challenge with a special gift. After 10 days your mind and body may thank you 😊 @chancieraefit @justpruvit @arohrer427 @tracytheprevivor #weightlosstransformation #ketones #ketoneshavechangedmylife #ketonesforfuel #lovemyself #stronger #findingme #lovingme #selfcare #strongmom #factorvleiden #posthysterectomy #postdoublemastectomy #brca1


7💬Normal

Rainbows are magical! #repost via @doxies_and_decor ・・・ My little rainbow babes 💙💙🌈🌈 . . I have a blood clotting disorder and had to give myself an injection every day I was pregnant with these two angels. They were worth every one . . 📷 credit @carmenfoxall . . #twins #twinboys #twinmom #twinmama #firsttimemom #rainbowbabies #rainbowtwins #factorvleiden #doublerainbow #5weeksold #pregnancyafterloss #pregnancyaftermiscarriage #PALS #pregancyafterlosssupport


0💬Normal

You get what you work for, not what you wish for. It has been a hell of a climb from where I was last year, but it feels so good. There's still more work ahead of me, but I'm feeling stronger and healthier everyday. Most of 2017/2018, I was recovering from two traumatic brain injuries, a spine injury, elbow damage, completely fractured sternum plus more injuries due to a head-on collision and subsequent fall that I was blessed enough to survive. It took time, tears, feeling sorry for myself, anger, lots of pain....but I finally made the decision that I wasn't a victim. I am a survivor and these accidents must bring positive changes in my life. Thanks to my amazing husband, family/friends, PT/Coach @tdmcgurl_pt , fellow Peakers, MPC, doctors, physical therapists and entire support team. ❤ you all! I will continue to work hard every single day!! 😘 #transformationtuesday #workoutroutine #cleaneating #peaker @alexnorouzi @valbo00 @jordanalbrown @samheughan @mypeakchallenge @sameyouorg


20💬Normal

32 weeks, 8 months...either way you split it it’s been one hell of a ride and I am amazed at what the female body is capable of when growing a baby (or two!) Proud of this body no matter how weird it seems sometimes ... 👶🏼💕 . . 📸 : @shelbyblantonphotography . . #maternityphotography #pregnancy #factorvleiden #babywilsonnye


2💬Normal

I know I’m late for #rarediseaseday2019 & I usually post about #allergyfriendly food/products but today I wanted to take a step away from that & talk a bit about what it’s like to live with #ehlersdanlossyndrome #mastcellactivationdisorder & #factorvleiden (yep I have 3 #geneticdisorder 🤣 you can see why when I’m in the hospital they always trot the #medicalstudents out. I’ve been told the chances they’ll ever come across anyone with this combo of #diseases again is slim to none so they don’t miss their chance 🤣 - #labrat - forget #zebrastrong I’m like “Pega-corn strong” 🦄- I need to be a more mythical beast) Today I want to shine a light on the financial & emotional toll having a #raredisease takes on a family. Here you see my medical bill for getting treatment for a standard, run of the mill infection that requires antibiotics to treat. If I was a “normal” person without these diseases & with insurance curing it would have cost me $10. A person without insurance - $35. As you can see my copay was over $3100 😮☹️ WHY? because of the 32 medications available to treat my infection I was #allergic to all but ONE - & this medication could NOT be taken in pill form but had to be given to me thru an IV. Imagine having to pay that anytime you needed an antibiotic, on a #oneincomefamily or you would die from #sepsis 😢 (continues in comments..)


19💬Normal

How many of you are fans of old-fashioned brick buildings? 🙋 Maybe it's because I grew up on the East coast, but I'm pretty much in love with brick; I used to live in a brick house, and as a kid one of my dreams was to own a brick townhome. 😆 I found this one on an impromptu road trip adventure (through a snowstorm, no less). 🧱❄️ . . . . . . . #photooftheday #brick #brickbuilding #buildings #architecturephotography #streetphotography #vscostreet #kansas #roadtrip #mood #instagood #womenwhoexplore #womenwhotravel #traveltuesday #adventure #wheretonext #flyventurelive #factorvleiden #invisibleillness #vintage #oldbuildings #smalltown #fortscott #midwest #livethelittlethings #infj #catholic #ponder #wanderlust #travelgram


9💬Normal

Found this picture of myself...25yr old me vs 38yr old me. Wow the difference! At 25 I was having undiagnosed PEs (pulmonary embolisms), TIAs (mini strokes), undiagnosed EDS, and dysautonomia, CHF was uncontrolled..... And there was so much more more. Since then I've gotten a devorce, had gastric surgery, handful of more surgeries, and infusions, IVIG, the right medication, becoming an herbalist, vegitarian mostly, yoga is part of my life and so is deep meditation, listening to my dreams. I'm not saying change is easy...but if I can fight to live and fight to be happy so can others. #onelove #25vs38 #loveandlight #lovethyself #eds #zebra #spoonie #warrior #asd #hashimotosdisease #RA #pacemaker #openheartsurgery #fibromyalgia #mcat #pots #tia #pe #factorvleiden #epilepsy #migraines #csfleaker #aplasticanemia


3💬Normal

💕CD14💕 So last month didn’t work out as I had hoped - the line faded and AF came. It sucked. I was so motivated to do everything I could this cycle but I honestly forgot to temp Every. Single. Morning!🤦🏼‍♀️ Finally got onto that! Have been waiting for ewcm to start using OPKs but randomly, today, I have ovulation pain! So late in my cycle too! Getting to CD14 without ovulating is so rare for me! I am worried that this will mean a very short luteul phase but I will be taking B6 everyday to help with that 👍🏼 I took one opk at 2:00pm and it was almost positive. Took another just now at 10pm and it’s more positive 🤞🏻 The pain in my ovaries feels like a have a bad stitch but on both sides. Like I’m being stabbed by tiny knives every time I bend over... why am I so excited by this when it hurts so much? 😂 I have felt it this strongly before but it always subsides without issue within 48hrs ☺️ Time to BD! 🤞🏻🤞🏻 #tccbabynumberthree #ttc #ttccommunity #ttcsupport #ttcjourney #fertility #regularcycle #28daycycle #fertilityfriendapp #tryingtoconceive #babydust #tryingforababy #cd14 #cycleday14 #ovulation #ovulating #ovulationtracking #factorvleiden #factor5leiden


0💬Normal

“At the end, someone or something always gives up. It is either you give up and quit or, the obstacle or failure gives up and makes way for your success to come through.”⁣ ⁣ I was talking to one of my coach friends about how disappointed I was in myself. I’m SO FREAKING CLOSE to finishing this 💯 day program, but I don’t have an amazing transformation to share & she said some things that really hit home for me. She said, “it’s not about the inches or the pounds or the “Oh my God, look at her transformation!” Like, you’re going to finish a 100 day program, how many people can say that sh*t?! Don’t discredit it, who cares if your nutrition is shit. You had all of these hard things you were facing and yet you decided to show up for YOU.”⁣ ⁣ Honesty hour, this will be the 1st program that I’ve ever completely, completed. It’s going to take me a little over 100 days, but I’m 16 (17 if you count the make up I have to do for accidentally doing day 24 twice) workouts away from finishing!! The workouts haven’t always been in order, I’ve missed days & made them back up, I’ve been sick & struggling big time, but I’m doing the damn thing. ⁣ ⁣ And that, my friend, is worth C E L E B R A T I N G! 🎉🎉⁣ ⁣ You see, I’m usually the FIRST person I break a promise to. Yet, when it comes to everyone else I will move a freaking mountain 🏔 to keep my word. ⁣ ⁣ What if you had a friend who constantly flaked on you? What if every other time you made plans she decided not to show up? What if she gave lame excuses like, “I really want to see you, but this TV show I’m watching is just so good”? 💁🏼‍♀️⁣ ⁣ Or what if you had a friend that was starting a NEW diet or goal every few weeks only for it to repeat because she just kept quitting on herself? Would you respect her? Would you trust her when you KNOW she’s just going to quit or bail every time? NO & that level of distrust & apprehension applies to you too. ⁣ ⁣ I decided enough was enough when I committed to this program, & while it hasn’t exactly gone the way I imagined it would, I’m still here & still working to complete each & every one of these workouts. ⁣ ⁣ Girlfriend, it’s time for you to commit to you, to. Let’s do this 👊🏼


5💬Normal

Morning workout with Jericho.


1💬Normal

Well they have finally started to "Rise"up and getting more painful...... FYI Blood Disorders SUCK!!! #monoclonalgammopathy #smolderingmyeloma #severeanemia #factorvleiden


2💬Normal

For this year's Day of the Dead/All Souls' Day, I thought I'd share some images of the oldest cemetery in New Haven, CT: Grove Street Cemetery. Opened in the late 1790s, it is surrounded by the campus of Yale University. Early citizens of New Haven, various Yale professors, and even nameless individuals all populate this fascinating place of rest. (I took these pictures on a cheap camera phone in 2009.) . . . . . . . . #allsoulsday #dayofthedead #cemetery #diadelosmuertos #grovestreetcemetery #newhaven #connecticut #oldpictures #oldphoto #vintage #rip #requiescantinpace #requiescatinpace #outdoorphotography #newengland #ponder #mementomori #catholic #flyventurelive #factorvleiden #invisibleillness #photooftheday #yale #explore #womenwhoexplore #solviturambulando #gravestone


7💬Normal

#real #raw #vulnerable #emotionsmatter 🥶🥺🥶🥺🥶MY WINTER Prepared for this cold winter? Tree fronds hang their heads, flashing lights hang tight. Bowed and bollixed presents — depressed. The absence of a merry Spring — the empty nest. Emotions chill, shiver... Turtlenecks without hugs. The whiteout of snow — knees shovel the heavy load. Deleterious decorations, keepsakes of holiday romance — kids sledding and cutting cookies, hot chocolate and kindled laughter. Icicles cling like burs to my dendrites, stinging my eyes. Yet, jingle bells soon ring, with Nor’easter winds — grandchildren chill for a season. and with chattering teeth, I grin.❄️☃️⛄️ When things go wrong as they sometimes will, When the road you're trudging seems all up hill, When the funds are low and the debts are high And you want to smile, but you have to sigh, When care is pressing you down a bit, Rest if you must, but don't you quit. Life is strange with its twists and turns As every one of us sometimes learns And many a failure comes about When he might have won had he stuck it out; Don't give up though the pace seems slow— You may succeed with another blow. Success is failure turned inside out— The silver tint of the clouds of doubt, And you never can tell just how close you are, It may be near when it seems so far; So stick to the fight when you're hardest hit— It's when things seem worst that you must not quit. #17surgeriesandcounting #17surgeries #thyroidcancer #thyroidproblems #vpshunt #iih #ptsd #traumaticbraininjury #pcos #factorvleiden #addisonsdisease 💎💎 Ephesians 5:20 Giving thanks always concerning all things in the name of our Lord Jesus Christ, to God, even the Father. #plussizeblog #curvyblogger #journaling #weekendvibes #weekendmood #singlegirl #singlelifeproblems #warrior #survivor 💊💉🧬🦠🌡🧪🔭🔬🧫#prayersneeded #miracleneeded #medicaltreatmentneeded #medicalinsurance #blueeyes #eyesarethewindowtothesoul


0💬Normal

A long time ago in a galaxy far, far away... well, I couldn't find pictures of our Star Wars costumes, but this will do. There I am with my brother and a neighbor kid who Halloween-ed with us a few years in a row. (Ah, we had such a love-hate relationship with him...😂). 🎃 . . . . . . . . #halloween #halloweencostume #costumes #costumeparty #trickortreat #kidscostumes #pumpkin #jackolantern #tbt #throwbackthursday #throwback #oldpictures #80s #flyventurelive #factorvleiden #kidsphotography #vintage #vintagephotography #throughmylens #photooftheday #mood #instagood #invisibleillness #moonboots #retro


8💬Normal

This past spring, after suffering another miscarriage, the doctors ran more tests and I tested positive for two gene mutations: Factor V Leiden and MTHFR. 🧪 Basically... I’m more prone to blood clots, and these issues have been connected to cases of recurrent early miscarriage. The solution: baby aspirin, prenatals, and folate supplements. (That’s it?!) 💊 And what do you know? A month after starting these [cheap and accessible] medications and healing from the miscarriage and D&C... I was pregnant. Without IVF. 🤯 I’m 22 weeks today, and baby is perfectly healthy and cute. But due to these gene mutations and another abnormal blood test, I’m on blood thinners for the rest of the pregnancy and beyond. 💉 We’re used to at-home shots, so that’s no big deal. I am just so thankful to have an active growing baby and for doctors who are on top of things making sure everything goes well. 🙏🏻 Ilana saw Mike giving me a shot this morning and said: “You get candy, mom? You poop on the potty and get candy?” 🍬 #22weeks #infertility #pregnancyjourney #factorvleiden #mthfr


13💬Normal

Our little musician! . It’s been amazing seeing him make progress with his piano playing and to be so brave for his first recital! 🙌 . I love that my business can provide the extras for my family.... . I get to work my business on my own schedule- anywhere from my phone.... . And I get to work it with my besties while working on my health and fitness. . It is so beyond worth it! 🙌🙌 . What could a second stream of income do for you? Your family? . Would you use it for bills or the extras? . Comment below and let me know! 👇👇


1💬Normal

Todays time hop popped up with this pic from 5 years ago so I wanted to share a different type of transformation.

I remember sneaking away in the corner of the gym to take this picture. I was unhappy with the way i looked. The way i felt. I didn’t understand how i gained so much weight. I didn’t know i had PCOS and so it makes things harder.

I had this negative voice in my head following me around. She didn’t sound like me but she told me that i was ugly and a loser. She always reminded me that i will never be like the other girls. The ones that make it look effortless. She always had me questioning why i even try anymore.

That voice and i are friends now. I tell her i understand that these were things i was taught from outside sources. That i was programmed to think this way from my upbringing, my relationships, my friendships, and people i let dictate my life for so long. I reminded her one day, that im my own damn person. That i can do this. I can break the cycle and so i stood the fuck up. Every day when it was hard. When i couldn’t do those push ups. When people were rooting for me to fail. When i worked 12 hr days and got home at 10pm. When i could barely breath from even walking up stairs. I. KEPT. GOING. Don’t let the negative voice inside win. Don’t let it tell you you can’t because you ABSOLUTELY CAN. Your physical transformation starts with your mental state. If you need help picking yourself up. Im here for you and i believe in you.


9💬Normal

A year ago I was a blissful cat mama carrying my Avery yarn ball. I had no idea that in 9 short days he would have to leave me and this would be the last holiday I’d get to celebrate with him. I daydreamed about what I’d be dressing him up as this first year. Instead tomorrow I’ll be traveling to Charleston for an ultrasound to check on his baby sister and praying that next year she gets to wear a Halloween costume. Proverbs 19.21 Many are the plans in a person’s heart, but it is the Lord’s purpose that prevails. The next few weeks are going to be difficult but I find some comfort in knowing the hardest ones are behind me. And for my babies I can do anything. Philippians 4.13 I can do all things through Christ who strengthens me. Shoutout to @afterevalyn for honoring the little pumpkin missing from our patch. . 💙💗👼🏽🌈#acornerforavery


7💬Normal

This is Halloween, this is Halloween!💀 HALLOWEEN, HALLOWEEN, HALLOWEEN, HALLOWEEN!!! My favorite day of the year! 👻 #halloween #dallas #deepellum #skeleton #skull #skullmakeup #latergram #saturday #factorvleiden #dvt #bloodthinner #eds #sobersally #potssyndrome #venousreflux


0💬Normal

Never miss a chance to dance. . Life is too short ✌🏻🙌❤️🔥😍


1💬Normal

The #1 cause of unfulfilled potential is never deciding that NOW matters more than any other time in your life....⁣ ⁣ IT D.O.E.S!!!


3💬Normal

Reposted from @coloradobehrs (@get_regrann) - It's official. We've hit full eskimo mode in Colorado. I loaded up on new winter gear yesterday because I've lost 70+ pounds since last year (in addition to the strides I've made in my injury recovery). 🙌 Whoop whoop MPC and my Coach/PT @tdmcgurl_pt 💪 Up to a foot more of snow expected today on top of the 10 inches we received Sunday/Monday. Oh...and the kids went to school on-time. ❄ Don't worry though...60 degree temps return next week. What the what? 🤣 #coloradolife #traumaticbraininjury #factorvleiden #physicaltherapy @valbo00 @samheughan @alexnorouzi @stetsonusa


1💬Normal

So proud of you! #Repost @coloradobehrs • • • • • • Colorado It's official. We've hit full eskimo mode in Colorado. I loaded up on new winter gear yesterday because I've lost 70+ pounds since last year (in addition to the strides I've made in my injury recovery). 🙌 Whoop whoop MPC and my Coach/PT @tdmcgurl_pt 💪 Up to a foot more of snow expected today on top of the 10 inches we received Sunday/Monday. Oh...and the kids went to school on-time. ❄ Don't worry though...60 degree temps return next week. What the what? 🤣 #coloradolife #traumaticbraininjury #factorvleiden #physicaltherapy @valbo00 @samheughan @alexnorouzi @stetsonusa


0💬Normal

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